Seth, Tyler and I went out yesterday and they saw me doing my hair so they wanted me to do their hair too, that is what the pictures are, lol they are so cute.
Yesterday Rob and I went to the hospital to get his blood tested to see if he could have chemo today and they said that his white blood cell count was too low it was .04, and .00 is the lowest. White blood cells help to fight infection, with it that low the chemo will just wipe out the rest of them. They have this really good drug that will bring his white blood count up and it is super expensive, we have coverage of 80% and that still left us with $185.00 to pay every 2 weeks because he will be on this drug for the rest of the time. I was so upset I started crying I think it was because of sudden bomb being dropped on us, last week we went for the same test and the doctors didn't think that Rob would need to be on the drug. The nurse then told us of this program that if we qualify they will pay the 20% that our plan does not cover. We then went to the hospital pharmacy with our form and the pharmacist said that we should just call them right away and that we could just do it over the phone..... 45 minutes later the company says that we have to pay $100.00 every time and that they will pay the rest, again we can not afford that every 2 weeks for the next 6 months. I mean we would have found a way but because he needed it but we don't have credit cards so it would have made it difficult. Rob needed the drug immediately because his white blood count was so low. Another 30 minutes later we called them back and they assessed again and said that they would cover the whole amount for us, WOW!! we were so happy, and I was so impressed that the pharmacist stayed late to help us figure this out. They went over and above their job to help us they could have told us to go home and call the drug company and come back tomorrow, I think they recognized that his white blood count was low and that was an issue.
You would think it is all good and done now right? Wrong!! The drug is to administered like a flu shot or insulin shot, and you have to do it at home by yourself. I was freaking out thinking that I would have to give the needle to Rob. Then on the way home I remembered that Leslie (step mom) was a nurse and that she probably gave lots of needles so we called her and she said that yes she could do it.
Rob has to have it for 3 days in a row every 2 weeks. Rob called me this morning and asked how many Tylenol he could take, one of the side effects of the drug is your bones are sore, he is in a lot of pain, and will be every time he has to take it which is tonight, tomorrow night and then all over again in 2 weeks.
It feels like we are walking in the dark about everything that we are going through it feels like I don't know the first thing about anything. They tell us to watch for a headache so Rob gets one and then we call and they say oh he is ok check his temperature and if it is fine then he can have tylenol and the only thing he can take is tylenol he can't have and aspirin or an advil cause they have blood thinners in them. At this time we can't look into the future for even a week, we have been asked what are you doing for Christmas and we have no idea it is too far away, will we even have a house then?electricity? heat?, my doctor is not returning the insurance forms so that we can submit them to our mortgage company. Which reminds me I should call the mortgage company and see if there is anything else we can do about it...... good news there is I can take the forms to the doctor who is treating him for the cancer and he will fill it out for sure.
Ok now I am all worked up so I have to go now