Tuesday, April 26, 2011

Last night when I was leaving the hospital the nurse in charge stopped me to tell me that they found the source of infection for Rob it is his line and so they are removing it right away today. They don't usually find the source of these problems so it was nice that they did this time and they can treat it with the appropriate antibiotic. Which means it will clear faster. There is a slight chance that this will delay his transplant by about 1 week or so. We are not for sure on that though. I asked where it could have come from and the answer was just about anywhere. I think I wanted to know that is wasn't me. The nurse said that something on Robs skin could have started there and worked its way in and just kept building. So thank you to all who prayed for Rob on Saturday night we are lucky to know what the problem is so we can eliminate and solve it. They will put in a new CVC line on the other side of his chest when it comes time to do the transplant. Last night they had put two IV's in him one on each arm, I feel so bad for him because he can only sleep on his back now.
I also wanted to note on yesterdays post that you are to read it just the way it is and not between the lines. I am not saying I will lose the baby I am just saying, why I told you so early.

Monday, April 25, 2011

I couldn't even sell my story people wouldn't buy it. This much stuff doesn't happen to one family at the same time. Rob is back in the hospital and they don't know what is wrong with him. He has a fever that is really high 41.7 which is 106. They do not know why, they have taken many blood samples and swabs in his nose. They have him on 3 different antibiotics along with the 2 he takes by pill form. He has been sick for about 5 days and when we called the doctor there wasn't anyone in on the weekends so she said he wouldn't probably sit there all weekend and it sounded like it was viral and there isn't much you can do with a viral infection. We had some appointments today so we came in and they are keeping him here. They give him Demerol when he shakes just before he gets a fever. That helps with the shakes it calms his muscles down. The issue is his organs are getting really hot, when he has a fever his toes are cold it is so weird. His blood pressure is so low it is crazy, and his kidneys are really irritated.
So when Rob came to the hospital this morning I went to the emergency room. I have been so sick for the past week and 10 days was enough. The nurse took some blood and a urine sample and pushed on my stomach and said does this hurt on my right side, and yes it hurt really bad. The doctor came in and pushed and guess what IT STILL HURT, lol she sent me down for an ultrasound to look at my appendix because the pain was in that spot. They couldn't see anything and couldn't send me for an MRI or CT Scan to see my appendix because the urine sample told them I am pregnant. I need to watch my appendix for the next couple days. Based on my calculations I am 8 weeks pregnant. You ask yourself why am I taking a risk and telling you so soon, it is because if you see me walking down the street in a month with no belly and a sad face you wont have to ask whats wrong.

Sunday, April 24, 2011

I know it has been a while let me tell you why. I thought there was something wrong with me it all started 9 days ago, I woke up nausea's and didn't really think anything maybe I was just stressed, so I went to work stopped and got some gingerale and continued on with my day, the weekend and into the next week, waking up not eating just drinking gingerale until about suppertime, then I felt better and would eat a little, just to wake up to the same thing the next day. I called in sick on Thursday because I was puking and realized it wasn't just stress, well and Rob caught it too so then I knew it was a flu. Rob has been sick for about 5 days and has been puking for the last 2 days. It is so sad around here, we were sitting on the couch yesterday so sick, with gingerale, crackers, and water beside us so we didn't have to move and we would pass it back and forth. With this sickness gravol doesn't even help. Robs fever has continually been over 40. The doctor said that this is viral and there is nothing they can do about it, if it was bacterial they could give him antibiotics. So we are just two sick people trying to help each other out. I am feeling a little better today but that is because I haven't eaten, it seems to make it worse, it is like a 24 hour flu everyday. Tomorrow we have to go to the hospital for tests and x-rays they want to make sure the line is in place, for transplant May 3, all though with Rob being sick if he is not ok by then they will have to delay the transplant. Then on Tuesday we drive out to Golden to get the boys, they went to Vernon for Easter.

Saturday, April 16, 2011



I posted the picture of the Pops I said I was making today. You can see them at thentherescake.blogspot.com I had fun making them. Last month Robs mom and Aunt came to visit and we started and finished a puzzle, it was really neat I liked it because it was rectangle not the normal square.
As for Rob he is doing really well, he worked on his RC car for a few hours today. We went to a friends house today for my friends daughters birthday party. Rob is a little tired but he had a nap today. He is doing amazing, I would say he is a little stir crazy, he is so bored, I feel so bad for him. We have a bunch of appointments on Tuesday, one I am interested in is with the Dietician and they will tell us exactly what he can and cannot have.

Friday, April 15, 2011

Good morning I have about 10 min before I need to go to work. I haven't posted lately because there hasn't really been anything to say. Rob is home and is doing really well. He has to take pills at 8AM 12PM 4PM 8PM and 10PM. I get his 8AM ready and he is awesome about taking the rest on time as well. He is taking 2 different antibiotics and I don't like that he taking them. He doesn't have an infection it is just in case he gets one, so I really don't like it. The other pills are potassium, and one that is for heartburn and acid reflux.
Rob doesn't do marathons or anything but he is doing amazing it doesn't strain him to go up and down the stairs. I think he might be getting a little bored though from not working.
Robs brother and sister in-law were here this week, they were such a help at getting Rob up and moving and getting him to eat. Last night Robs Aunty Margaret and Uncle Dave came to visit, we didn't even know they pulled up at the house and I was watching out the window and it took me a few seconds to put it all together, I recognized them and I said to Rob look who is here I couldn't tell him who it was though, lol!! It was unexpected and really nice to see them.
I am excited to make cake Pops today and tomorrow for my friends daughters birthday, it is an outlet for me, some people like to sit and read a book, I like to make Pops.

Monday, April 11, 2011

Wow it has been a crazy day. I went to work this morning then to the hospital for the day and went back to work for the afternoon, made supper, went to wal-mart to fill Robs prescriptions, cleaned the kitchen and bathroom. I am exhausted. Rob is home now his brother and sister in-law are here and were at the hospital all day so they drove him home.
Today Rob's white blood count was really high 9.6 so they took his stem cells out. He sat hooked up to a machine that took blood out and put the blood back in. They were looking for a 555 billion stem cell count, they went past 570 billion. He was on the machine for about 4 hours which is really good, normally it is longer than that and this process can last up to 3 days 6 hours a day.
Something I learned the other day that was really interesting I thought I would share it with you. Stem cells turn into other cells, and nutrifils are part of the white blood cell, that is actually your immune system. Rob has lots of nutrifils, right now so his immune system is ok. The nutrifils are the mature stem cells, so they know that you have had that cold before, and that vaccine before. They are going to give him one more shot of chemo and then give him his stem cells back. It will kill all remaining cells and that is why he will have to have vaccines again because his stem cells wont know that he has had them. It is like a bone marrow transplant with your own stem cells. It will be really hard on his body because it will be so confused. Rob had another platelet transfusion today, because they were too low and his blood wouldn't clot. He had a reaction to it, he had rashes all over but they cleared after some time.
I cracked today, Rob didn't want to get up and move, or eat. I snapped there were some words exchanged and he ate everything on the plate. Then the doctor visited him and told him to go home. Imagine that he did just fine, and he is doing really well now. I think you lose the fight in the hospital because you know they will fight for you if something goes wrong.
There was a question in the comments on the last blog and he gets his stem cells back in May and the projected date to leave the hospital is May 19, just in time for our 6 anniversary, too bad we wont be doing anything for that. He has to be really careful about where he goes and what he eats. See God is really smart we aren't born with teeth so we can't eat vegetables unless they are soft and fully cooked, which means they would have been washed and all bugs would have been removed. You wouldn't give your baby mayo, or jam because they wont be eating toast or sandwiches. Rob has to watch what he eats, like really wash the lettuce and tomato. He can only have condiments if they are individually packaged. So see your baby wouldn't have to worry about all the things that could go wrong with food. Rob has to watch because he will have a weak immune system.

Saturday, April 9, 2011

This post goes to Seth and Tyler. I miss my boys so much. One day I will tell them all about this but I hope till then when this is over they forget all about it. The boys have my mom, so I need to be with Rob. I was going to leave last night and his fever spiked and he was shaking, all he wanted was for me to just be there, I don't need to say anything, just be there. It is hard to watch Rob with a fever of 40.2 he is not functional, and sometimes I forget that because there are no other signs like puking or a cold. Rob is such a fighter. I just want to stand by their daddy so he can get better and be there for them. I should go to bed instead of writing this because I am a little emotional. I was thinking I just want a normal day with my boys, I was complaining that I take the boys with me to work I thought that was hard, I would love to take them to work with me right now. Sometimes the boys frustrate me, right now I would take that frustration, because that is normal, missing them is not a normal thing a parent should have to go through, unless of course you are on a vacation, this is no vacation. I complain about all the laundry they make, I would love to do their laundry right now. I wanted them to grow up and dress themselves, I would love to dress them right now. The worst part of being a parent for me is bum wiping, I would love to just wipe their bum. It is sad that they have to go through this right now, but everything happens for a reason. We can not have children anymore and if we didn't have them when we did and so close together they would have never been born. When I see the boys it feels strange like they don't want me there in the sense that if I am not going home with you I would rather not see you at all. I know that is not the case, their world has been turned upside down, they don't get it and I don't know what to do about it. I want things to be as normal as possible for them but every time I try there is a hiccup. They have to go to my moms because Rob got sick and was back in the hospital, they had to go back to my moms because they caught a cold and couldn't be around daddy. I was going to put this yesterday but I forgot. The shots that Rob is receiving makes his bones throb so bad that he doesn't want to move. It is like a pulsing sensation that doesn't go away and tylenol doesn't even touch it. Morphine seems to dull it enough for it to be bareable for him. They took Rob off of the second antibiotic that was making him so sick. I am trying to push him a little, but he hasn't been eating and is really dizzy when he sits up and he puked again this morning. It is so hard I am trying to push him to fight for this but he just wants to lay there and not move. He is not eating which is half of the problem, he does so much better at home, but he wont fight to get out of bed. The nurse was saying that this is normal because his body is working so hard right now. Robs counts today White blood cell 3.1, a huge jump they took a blood sample today and then they will take one tomorrow morning to see how many are actually floating in the blood Red blood cells are 110 Platelets are 22, this is really slow but is much better than yesterday. There is a creatin that is released in your body by your kidney that you have to watch because if it gets really high it can damage your kidney. Robs is borderline, so they want him to drink more and they put him on an IV so that it will filter out his kidney. Rob is having a nap right now and his whole body keeps jumping as if someone is poking him. It is the injection that is making his bone marrow work and that is what is hurting him.